English

This website is brought to you by a patients' organisation, the ADCA-Association of The Netherlands. This page is the only one we provide in the English language. If you have any questions, then please send an e-mailmessage to info@ataxie.nl. And you may want to visit the web sites of the European federation of hereditary ataxias (euro-ATAXIA, www.euro-ataxia.eu), and the National Ataxia Foundation (NAF, USA, http://www.ataxia.org).

About cerebellar atrophy/ataxia
When the cerebellum is effected, our muscles are less controllable. By moving carefully and slowly, and by thinking at every move, it is still possible to make reasonably good movements. However, the result will be considerably less than before. Ataxia is the result.

About the ADCA-Association of The Netherlands
Founded in 1994, we now have over 500 members and some 100 donators. Apart from activities to maintain our association, we have information services (folder, website, newsletter), meetings for patients, friends and families, representation and participation (through membership of umbrella organisations), and we support scientific research.

Prevalence of ADCA in The Netherlands
Per 1 November 2000, the prevalence of ADCA (Autosomal Dominant Cerebellar Ataxia) in The Netherlands was estimated at about 480 people within 140 families (3:100,000). (Source: "Autosomaal dominante cerebellaire ataxieën in Nederland: een nationale inventarisatie" / Werkgroep Spinocerebellaire ataxieën in Nederland (SCAN): B.P.C. van de Warrenburg).

© 1996-2010 ADCA-Association of The Netherlands.
Mail address: Postbox 91, NL-3980 CB Bunnik. Visiting address: Smalleweg 6 B, NL-3981 EG Bunnik.
Phone: +31 30-6569635. Fax: +31 30-6569639. E-mail: info@ataxie.nl.
Registered at the Chamber of Commerce of Utrecht, The Netherlands, nr. 40482798.